Category Archives: treatment access

Waheedah Shabazz-El at John Bell’s memorial service, 10/5/12

At the memorial service for AIDS activist and teacher John Bell, Waheedah Shabazz-El speaks about his passionate dedication to ACT UP Philadelphia; fighting for HIV prevention and medications for people around the planet; sharing principles for building a better world; and his work teaching and reaching out to incarcerated people living with HIV.

She also speaks about her own journey, made smoother and enriched by his mentorship: “He gave me hope that day…. He gave me the bridge I needed… to come out of that troubled water. And when I came to the other side, there you all were—this loving community. “

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by | October 6, 2012 · 4:49 pm

We Can End AIDS! Five marches converge for creative action at the White House, July 24, 2012

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by | July 25, 2012 · 8:42 pm

Don’t miss this massive protest July 24th during the Global AIDS Conference in Washington, D.C.

You knew it was coming. It’s been almost 30 years since the International AIDS Conference was in the U.S. — and this year, it will be in the nation’s capital just a few months shy of an election that many see as a referendum on access to healthcare. The worldwide media will be there. AIDS policymakers from all over will be there. And AIDS activists will gather to make as big a splash as we can.

The thing I love about this protest is not just how big and gorgeous it’s going to be — with 5 branches representing unique struggles that make up the AIDS movement — but that it unashamedly tackles the real problems, the complicated mess of profiteering and stigmatizing and controlling human beings that has caused and perpetuated the AIDS crisis. Please go to www.wecanendaids.org immediately to find out how you can get on the bus, meet up with the convergence in D.C., and get more involved. Read the captivating platform here and find contact info for transportation from your city here. For more information about the 5 branches of the protest, click here.

1. Fight Pharma’s Corporate Greed: People over Profits, Health Care and Treatment Access for All.
2. Tax Wall Street: Use a Robin Hood Tax to Fund AIDS Treatment, Prevention and Health Care, Provide Jobs, and Fight Climate Change at Home and Around the World.
3. Promote Sound Policies: Public Policy Based on Science and Human Needs; Lift the Federal Ban on and Fully Fund Syringe Exchange Programs.
4. End the War on Women: Reproductive Justice and End Gender-Based Violence
5. Respect our Human Rights and Promote Harm Reduction: End the War on Drugs and Drug Users; Confront HIV Criminalization, Stigma, Mass Imprisonment and Anti-LGBTQ Violence and Discrimination.

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Filed under African Americans, criminalization of HIV, Drug users' rights, economic justice, gender, harm reduction, people with AIDS in leadership, prison, sexual violence, stigma, treatment access, Uncategorized, Washington, DC, women

Prison Health News: Spring 2012 Issue!

You can download it as a pdf for reading by clicking here, or the printable version by clicking here. See the end of this post for helpful printing instructions.

ImagePrison Health News is a print newsletter read by about 5,000 people who are locked up in prisons and jails across the United States. It is produced by a Philadelphia-based collective of writers and editors and includes the work of imprisoned artists and writers. Our readers are living inside a system that denies them prevention tools and treatment information about HIV, hepatitis, and other health issues. They are dealing with medical neglect, daily humiliations driven by intense stigma, and the destruction of their communities by mass imprisonment.

Prison Health News is a project of the HIV/AIDS services organization Philadelphia FIGHT. Volunteers answer the many letters to us from people in prisons and jails asking for resources and health information.

To help distribute Prison Health News, contact:

Institute for Community Justice, Philadelphia FIGHT
21 S. 12th Street, 7th Floor
Philadelphia, PA 19107
Office: 215.525.0460
Fax: 215.525.0461

Instructions for printing Prison Health News on your home printer:

1. Download the printable version here.

2. Use Letter size (8 1/2 x 11) paper. Make sure that the printer is not set to reduce, or “scale” the document. On my Mac in Preview, I go under “File” and click on “Page Setup,” then make sure “Scale” is set to 100%. I don’t think it’s much different for other computers and programs.

3. In the printing options, select “Odd pages only.” Press print.

4. Half of the pamphlet will print. After it finishes printing, take the whole pile, flip it over, and insert it back into the printer. It usually has to be flipped over lengthwise, but you might want to make sure by using a test page.

5. In the printing options, select “Even pages only” and press print.

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Filed under African Americans, arts and culture, criminalization of HIV, disaster capitalism, police repression, prison, stigma, treatment access, Uncategorized

Why AIDS Activists Occupy Wall Street — and How to Get Involved!

In 2008, as the stock market crashed and Congress prepared to give trillions of tax dollars to the banks, I desperately emailed all my AIDS activist friends: “We’ve got to stop this bailout! There will be no money for Obama to do anything for our communities.” I felt like a nay-saying bore for endlessly harping that getting politicians to expand their campaign promises is a losing strategy, because politicians lie, and only ending capitalism will shift power and priorities toward health. But when Occupy Wall Street protesters started camping out in lower Manhattan last September, chanting, “All day! All week!” and never leaving, the AIDS movement lost no time in recalling its birth in ACT UP New York, which brought the stock exchange to a screeching halt one day during a protest against price-gouging AZT (watch this thrilling interview with Peter Staley describing the 1987 action or read this recent interview with Douglas Crimp). AIDS activists got involved in OWS immediately, to the great benefit of both movements.

Occupy Pharma!

The HIV Prevention Justice Alliance intends to seize the bull by the horns this year, putting “generic drugs and drastic price reductions at the top of the agenda for the domestic HIV/AIDS movement in 2012, moving beyond the ADAP waiting lists to insist on treatment on demand for all.” Alright, PJA! (Read the PJA Action Agenda here). With this kind of vision, the campaign should attract tons of new activists and enliven the rest of us (Join a PJA working group here).

Targeting Big Pharma is not just the most direct route to the root of the problem — the exorbitant profits made at the expense of access to lifesaving treatment. It’s also a way out of the trap of merely resisting the budget cuts that have wracked our communities, or demanding more funding from a government that cares more about banks and corporations than human beings. Led by ACT UP Basel, Switzerland, the current AIDS activist campaign against Novartis is an inspiring example. Why focus all our attention on getting presidents to pledge more tax money for pricey patented meds in developing countries, when we can get generics for all if we keep fighting for them? Novartis sues India to stop making generics for the world: activists occupy Novartis offices in 3 cities during a global day of action. Bam. Let’s build on this! Last week, India issued a rare compulsory license to allow generic production of a Bayer anti-cancer drug, which will save many lives and also bring more Big Pharma pressure to bear on the country. Our voices are needed.

And just before May Day — when occupiers everywhere call on the 99% to carry out a People’s General Strike — ACT UP New York will return to Wall Street for its 25th anniversary action.

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How AIDS Activists Have Occupied Since September

This year’s actions should be fierce, building on the strength of last fall. AIDS activists didn’t sit around wondering if the new 99% movement would invisibilize AIDS, they stepped up to build a true, strong unity that appreciates the strengths that difference offers. A complex unity, as envisioned by revered anti-prison activist Angela Davis, who spoke of the convergence of single-issue movements at Occupy Philly in October. AIDS activists passed out this excellent flier from Housing Works at #OWS to educate occupiers and link the issues.

Andrew Coamey, a Housing Works senior vice prez, penned “Why I Occupied Wall Street” to inspire others to take the plunge. After a gay, HIV positive AIDS activist was punched by a New York police official at an #OWS protest, even more outraged AIDS activists marched with the new movement (see video of police official punching AIDS activist Felix Rivera-Pitre here). After participating in the #OWS global day of action in November, AIDS activists staged a sit-in dressed as Robin Hoods on World AIDS Day, demanding a financial transaction tax to fund the fight against AIDS locally and globally (see video and photos here).

More than 20 cities participated in the Occupy our Homes day of action in December. AIDS activists at VOCAL helped lead the occupation of a home in Brooklyn, where predatory lending and foreclosures have thrown many families onto the street, and helped a homeless family move in (watch this incredibly inspiring video). As longtime AIDS activist Sean Barry said to The Raw Story in an article about the action, “We’re here because [there are] a lot of empty buildings owned by Wall Street banks and we’re going to liberate them.”

As the AIDS movement returns to its rabble-rousing roots, it’s up to us to tell the story of the early days of our movement, as Douglas Crimp’s recent Atlantic Monthly piece on the 1988 activist takeover of the Food and Drug Administration does.

As for myself, I spent a few months last fall shirking any form of paid work, spending my time making videos for Occupy Philly Media and working on Prison Health News. Now, I’m working full-time as a copy editor for a medical publisher to catch up on my rent. But this blog is still on! See you in cyberspace….

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Filed under displacement and gentrification, Drug users' rights, economic justice, housing, New York City, police repression, revolutionary strategies, treatment access, Uncategorized

Prison Health News: Winter 2012 Issue Out Now!

You can download it as a pdf for reading by clicking here, or the printable version by clicking here. See the end of this post for helpful printing instructions.

This issue’s got

  • Why Are So Many People Incarcerated in the U.S.? by Waheedah Shabazz-El
  • The Formerly Incarcerated and Convicted People’s Movement by Tina Reynolds
  • Prison Food: The 411 of Navigating the System by Tré Alexander
  • Reach the Light by Kyle
  • How to Obtain Your GED While in Prison or Out by Stanley J
  • Preventing, Diagnosing, and Treating MRSA by Ronda B, Suzy S, Bernard T, and Naseem B

plus, addresses in different regions of the U.S. to write for Advocacy and Support Resources and Informational Resources!

Prison Health News is a print newsletter read by 2,500+ people who are locked up in prisons and jails across the United States. It is produced by a Philadelphia-based collective of writers and editors, most of whom have been in prison and are living with HIV, and includes the work of imprisoned artists and writers. Our readers are living inside a system that denies them prevention tools and treatment information about HIV, hepatitis, and other health issues. They are dealing with medical neglect, daily humiliations driven by intense stigma, and the destruction of their communities by mass imprisonment. Continue reading

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Filed under African Americans, arts and culture, economic justice, Philadelphia, police repression, prison, treatment access

World AIDS Day 2010: Another funeral, to stand for many funerals

Today I got on the bus with ACT UP Philly and participated in the World AIDS Day action at the White House, where we sang hymns and chanted for the $50 billion that Obama promised to fight global AIDS. A crew of African women who have formed an ACT UP Maryland chapter performed a skit to show us what it looks like when dying people go to the doctor and the doctor says, “We have no meds for you.” A Washington, DC, pastor offered a prayer and a poignant reminder of the epidemic here at home, telling us that he had attended five AIDS funerals for people in his life during the past year.

Before the global AIDS protest, we met up in the morning outside City Hall in Washington DC to demand housing for people with AIDS. Mayor Fenty has recently closed some shelters, and now even more people in the city with America’s highest HIV rate are dying in the streets.

Check out the photos from the protest/funeral at the White House, taken by Kaytee Riek, by clicking here.

 

"In Loving Memory..." (photo by Kaytee Riek)

 

African doctors try to find ways to comfort their patients when there is no treatment. (photo by Kaytee Riek)

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Filed under Africa, African Americans, economic justice, housing, treatment access, Washington, DC

ACT UP Philly still taking it to the streets! End waiting lists in Philadelphia, the U.S., and around the world!

President Obama promised to ensure that everyone has access to AIDS drugs by 2010. But now, the year that everyone was supposed to have access, 70% of people with HIV still lack access to medication!

************************************************************************
Join us as we tell Obama:

END THE WAITING LISTS
FOR PEOPLE WITH AIDS!

MONDAY, SEPT 20TH @ 2PM
Meet at Broad & Arch
We will march to a fundraiser Obama is attending at
the Convention Center
************************************************************************

– The US is limiting access to treatment to only those in the most dire need around the world. Others are being forced to wait in line until they get sick before they are eligible!
– In the US, more than 3,000 people with AIDS have been forced onto AIDS drug waiting lists, due to state budget cuts!
– Here in Philly, hundreds of people with AIDS are forced to wait in line for housing. A stable home makes it possible to take meds regularly.

Sponsored by:
ACT UP Philadelphia, Health GAP and Philly Global AIDS Watchdogs (GAWD)

More info:
actupphilly (at) gmail.com

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Filed under economic justice, housing, Philadelphia, treatment access

Follow the Activist Media from the Global AIDS Conference in Vienna!

Global AIDS activists will be blogging from AIDS2010 at Take a Number (in Vienna!), a grassroots activist media site that is being organized by Health GAP.

Be sure to check it throughout the week! The conference only happens every 2 years, and activists fiercely make their presence known while the corporate media is paying attention to AIDS and world public health leaders are assembled. Activists are angry that wealthy nations are using the financial crisis as an excuse to renege on their commitments to make sure everyone in the world who needs AIDS treatment has access to it. Here are some photos from day one of the conference by Kaytee Riek:

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Filed under Africa, economic justice, Europe, imperialism/colonialism, treatment access

ADAP Crisis: More people on waiting lists for HIV meds than ever before

“We die — you make money!” That’s what we shouted at the stock exchange in 1997, during ACT UP New York’s 10th anniversary Wall Street action. How is Wall Street doing today? It’s hard to tell. The Campaign for America’s Future reported in April that “multiple federal agencies have disbursed $4.6 trillion dollars in supporting the financial sector since the meltdown in 2007-2008…. This is an astonishing 32% of our GDP (2008) 130% of the federal budget (FY 2009).”

OK, so how are people living with HIV and AIDS doing? Well, The Body reports that as of July 1st, 2,090 individuals in 12 states are now on waiting lists for lifesaving medications through the AIDS Drug Assistance Program (ADAP). Since its founding more than ten years ago, ADAP has always been in crisis. But this is the longest the waiting list has ever been.

According to a July 1 New York Times article, Arkansas and Utah have dropped people from the program, cutting off meds they were already receiving. New Jersey plans to cut eligibility on August 1st, removing 600 of the 7,700 people in ADAP in that state. The article goes on to say, “Louisiana capped enrollment on June 1 but decided against keeping a waiting list. ‘It implies you’re actually waiting on something,’ said DeAnn Gruber, the interim director of the state’s H.I.V./AIDS program. ‘We don’t want to give anyone false hope.’”

OK, so how are the drug companies doing? A September 2009 Kaiser Family Foundation chart shows us that the pharmaceutical industry is doing quite well, thank you very much, while other industries are tanking due to the recession. I’m not exactly sure what 19.3% profitability means, but I’m told it translates to very fucking profitable, and try to chase our asses to our private island resort to get some of your money back, suckers!

I worked at a pharmaceutical advertising agency for a year to pay off my credit card debt and learn medical copyediting. They threw money at me — a $45,000 salary to make zerox copies and put them in a binder. Why is the pharmaceutical advertising industry so rich? Why does it even exist?

What if, like every single other country in the world except for New Zealand (according to ABC news), drug companies weren’t allowed to advertise to consumers? What if instead of spending $5 billion in TV, radio, magazine and newspaper ads each year (says Nielsen Media Research, cited in the ABC news article above), they simply lowered their prices? What if corporations weren’t allowed to sell lifesaving medications at a profit? Imagine that.

Advocates from the Fair Pricing Coalition have negotiated rebates and better prices from drug companies for ADAP in recent years. But their hard work and success have not been able to prevent the current ADAP crisis. Activists from every major AIDS advocacy organization are issuing action alerts this week. Currently they are asking everyone to call the president. Go to the Bilerico Project to take action: http://www.bilerico.com/2010/07/president_obama_address_the_adap_crisis.php

Check out the AIDSConnect.net blog for ideas on how to build a lasting and powerful movement to fight for our community’s right to the medications that keep people with HIV and AIDS living strong.

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Filed under disaster capitalism, economic justice, imperialism/colonialism, Southern United States, treatment access